
Dear Friends, Family, Loved Ones and All Others,
Since the last blog post there has been little activity on the medical front. We have been enjoying spending time with Mila and honestly quite involved and busy with our own respective jobs. We work daily with Mila on learning to focus and begin to track objects. We have a set of black and white tiles with objects (animals, faces, shapes, etc.) along with other toys and household objects (including a painting by Mr. Mark Malmgren himself) that we put in front of her daily in hopes that it will help.
That job, if we are honest, often feels fruitless and sometimes even futile, but then there is a bright flash of brilliant light and happiness as we see what we believe is focus and engagement or hear the tiny squeals of delight as Mila suddenly enjoys what we have put in front of her and begins to squirm and wave her arms and legs.
We also have been keeping a close watch on Mila's right eye. As expected, and against all of our hopes, we are beginning to see more of the shelf creep into the lower corner. It is not only more visible but does seem to be closing. Unless it stops...this will inevitably mean another surgery at some point in the near future. We do not believe, after what we have learned from the doctor, that this progressive closure will cease once it has started. We know that miracles do happen, and that we still have some time before an operation is the only resort.
It seems that once again we are reminded of the cycles that each of our lives go through, and that none of us is immune to their effects. Just as the moon is slowly lit and becomes brighter and whiter with the days passing, so to does its surface return to darkness. I am reminded of that as I look into Mila's eye and watch the crescent moon shaped shelf waxing slowly into a full moon.
Sometimes we wish that these things would pass by quicker than they will, we want to rush them, move through them and on to the other side sooner than we can. As I look into Mila's eye I see that there is no slowing the moon's progress, and there is much despair in that, but there are things far worse than a full moon, and even an empty night sky can be disorienting and frightening.
Our cycle will pass in its own time, we will go from night to day, and Mila's vision will eventually improve, with the help of God, the Universe, your love, and her parent's open hands and hearts and minds.
Thank you for keeping up with us, and for keeping us in your thoughts, and prayers. We will let you know what we find out.
Until then, please keep reading,
T,P,&M
Hello Travis and Priscilla and Baby Mila,
ReplyDeleteWe didn't even know your precious baby had come into the world, much less that she has endured so much in her short little life, as have you all. I have loved reading your blog, Travis, and will follow Mila's progress, (and there has been so much of that), with prayers and thanksgiving for your skilled doctor and strength for you and your family. Sending love and prayers for Mila's complete recovery..I hope you can feel them. Linda Helsabeck